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Rheumatoid Arthritis

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  • Fatman
    replied


    Sarge, good looking?



    But I'm glad you made it because the alternative sucks!

    Leave a comment:


  • Rapier
    replied


    Dad gum, that sounds tough for a guy, waking up frozen, sounds like you were lucky to wake up. Had you kicked off they probably would have said you died from a heart attack. Some of this stuff is hereditary, I wonder about RA?
    Ed

    Leave a comment:


  • The Only Sarge
    replied


    Fatman wrote:
    The Only Sarge, get a load of this. I went for my yearly VA physical and asked about the RA lung fibrosis I have. Now understand I have never smoked a day in my life so when the doc told me to consider starting to smoke I about fell out! So after checking this quackery out, I found out it's legit. So I'm thinking about cigars or waiting for medical marijuana because cigarettes just stink. Do you have any other RA related issues besides the joints? :stoner:
    Doctors kept telling both my Grandpa's to stop smoking. They both lived till almost 100.l

    Oh my RA just snuck up on me all of a sudden. One night I just woke up totally frozen stiff and having strokes. The arteries in my neck had swollen shut. I mean that quick.
    Took 4 doctors and 2 months to finally diagnose RA. I was treated for Lyme Disease for awhile. Polymyalgia for awhile. Lots of Prednisone and pain killers. It was tough.
    Then finally I went to see a Rheumatologist and he diagnosed me with RA. Chemo (Methotrexate) and Prednisone and I was good. Now just Methotrexate alone keeps me in pretty good shape. I have a "flair" once or twice a year. It attacked mainly my left elbow and both shoulders...but also my eyes and liver.

    Still good looking son of a gun though

    Leave a comment:


  • Fatman
    replied


    The Only Sarge, get a load of this. I went for my yearly VA physical and asked about the RA lung fibrosis I have. Now understand I have never smoked a day in my life so when the doc told me to consider starting to smoke I about fell out! So after checking this quackery out, I found out it's legit. So I'm thinking about cigars or waiting for medical marijuana because cigarettes just stink. Do you have any other RA related issues besides the joints? :stoner:

    Leave a comment:


  • Rapier
    replied


    Sarge,
    My Grandmother was afflicted with RA it is or can be pretty bad in the later years of life, if not treated properly. She died at 95 in 2003 a bit before the meds that are available now, but it was much to late for her by then in any case. I sure hope you can find a medication or a combination that works for you.
    Best,
    Ed

    Leave a comment:


  • Thecyberguy
    replied


    The Only Sarge wrote:
    Your a man of few words
    I posted a URL, which I guess is no no since it didn't show!

    ETA: will erase the post since it did not show. Have e-mailed myself and then posted the link--works that way sometimes.

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  • The Only Sarge
    replied


    Your a man of few words

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  • Fatman
    replied


    Charley wrote:
    I'm very, very fortunate in that I don't have RA, my wife doesn't, and we don't have a family history of it. OTOH, menfolk in my family tend to drop dead of heart attacks in their mid to late 50s. They were all smokers, some heavy smokers, so that should make a difference for me. I've already outlived my father and my maternal grandfather, dead at 56 and 59 respectively.
    Dang it man, that sounds like my mothers family all dead from heart attacks/strokes/cancer before 60. My mother made it to 73 and out of 3 siblings and 15 cousins, me and a girl cousin are the only ones who haven't experienced one of those mentioned yet. Ironically we are the oldest of all of them. Think it's because I vent my aggression thru firepower? :confused:

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  • Charley
    replied


    I'm very, very fortunate in that I don't have RA, my wife doesn't, and we don't have a family history of it. OTOH, menfolk in my family tend to drop dead of heart attacks in their mid to late 50s. They were all smokers, some heavy smokers, so that should make a difference for me. I've already outlived my father and my maternal grandfather, dead at 56 and 59 respectively.

    Leave a comment:


  • The Only Sarge
    replied


    Well thank you.

    I would be remiss if I didnt share an excellent resource for those with RA.
    http://rawarrior.com/

    Leave a comment:


  • oldillini
    replied


    Sarge, sorry to read about your RA. Can't say that I have experienced it, but have seen the effects of the methotrexate. As a young girl my daughter went through treatments for an auto-immune disease. The treatment was 10mg daily of methotrexate with monthly "bursts" of 600mg by IV.

    I wish you well, Sarge. Prayers with you.

    Leave a comment:


  • The Only Sarge
    replied


    It is a full time disease. No breaks.
    They are making progress with treatments. I cannot imagine having this 40-50 years ago. Golden Powder and massive doses of aspirin.
    The newest family of drugs show significant promise. I do believe the education of our Doctors for RA has significantly improved. They are much more aware and can treat holistically versus just treating symptoms.
    It is our job as patience to educate our Doctors also......never just take a Rx with no questions....

    Leave a comment:


  • 9.3X75R
    replied


    I am not personally a victim of RA, but I've lived with it for over 20 years. My wife was diagnosed at 38 or 39 and she's 60 now. Sarge, and you guys who have been diagnosed with this insidious disease you are in our prayers.

    My wife does quite well. I know she is on Methetrexate and some other pills but I don't recall what. Her big lifesaver has been Humira, which she has been blessed to be able to get for about 4 years. If it were not for Humira she would be in a wheel chair by now. The firs 10-15 years or so the "regular" RA drugs kept her going. After that...it was getting rough. She has learned that exercise, not pumping iron or running, her thing is gardening, helps immensely. Diet does not appear to have much effect on hers.

    The Humira suppresses the immune system, which is what RA is, it is your immune system attacking your body. We are now more in fear of infections, influenza, pneumonia, strep and staph than the RA.

    For those unfamiliar with it, RA is truly insidious. Most folks just don't understand, this person looks fine...it can't be that bad...has to be in their head. No, such is not the case. I have some osteo and just plain old wear but it cannot compare to what this disease does to a person. It's like any other dread disease in that the only one effected is not just the victim. As a spouse there is almost nothing you can do. Comfort measures. I am a bit prone to worry and when the effects of my wife's RA were becoming evident I worried for her....and was powerless to do a diddly darn thing. Not to be flip, but the effects of worry are like the effects of recoil, accumulative. Over several years I eventually worried myself into mild depression. My doctor recognized it and being familiar with both of us she knew what was going on, we nipped it in the bud and I'm fine now....but you don't stop worrying.

    Sarge, and you other guys, hang in there and God love you.

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  • Fatman
    replied


    The Only Sarge wrote:
    My fear is running out of Methotrexate. No way to "stockpile".....I would be screwed.
    PM me if you dare.

    Leave a comment:


  • The Only Sarge
    replied


    Tuning the meds/diet is key.
    I am on just Methotrexate. My Doctor "quit" over ObamaCare and just does consulting now so I am breaking in a new Rheumy.
    I had pneumonia last week and the Dr. gave me 50mg Prednisone a day for 5 days. I think it reset my Methotrexate clock.....because I feel great the past few days. No pain at all. Cleared up the pneumonia also

    My fear is running out of Methotrexate. No way to "stockpile".....I would be screwed. I stockpiled a few thousand mg of Prednisone. But live Rx to Rx on Methotrexate. Slightest wrinkle in the supply chain and I am sunk.

    Leave a comment:

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