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Rheumatoid Arthritis

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  • Fredvon4
    replied
    Sorry jumped past all 4 pages so if this is already discussed I am apologetic
    I have this problem
    But I was an Army Brat and 20+Year soldier with a LOT of overseas assignment and a LOT of Vaccinations... and eventually came home with Tuberculosis....

    Diagnosed with all sorts of bad stuff.... and each doc wants to prescribe the newer and newer immune system controlling drugs...and I keep saying I do NOT want my TB bug to wake up....

    to a man now...5 different docs...none can say that my Decades ago INS treatment for TB fully created a cyst around that bad bug....
    So many-- or possibly all ---the warnings on tv that go on for 45 seconds, about all the side effects...you know sudden death and anal leakage and things like that....

    I pretty much tell every doc....If I have to Hire Bangle, Bangle, and Bangle....YOU will be named...

    MY RA is currently managed by diet and exercise...and yes Virginia the fracking exercise hurts!

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  • Rockydog
    replied
    Nick, I too have Ankylosing Spondylitis. Miserable disease that adds bone to your existing bones. I have a couple of vertebrae that are self fused. I actually have 3 vertebrae that are adding bone behind my esophagus in an attempt to fuse the vertebrae together. They have grown large enough that I'll need surgery this spring to remove the bone growth as my esophagus is about 50% occluded and swallowing food is getting to be a real challenge at times. My head and chin sit at an angle that mimic a mime walking into the wind, head down nearly looking at the ground. Shooting prone is totally out of the question.

    I tore the quad tendon completely off my kneecap two years ago partially due to the fact that a bone spur had grown between the tendon and the kneecap weakening the attachment. Am not on any pain meds right now and will likely not be on any in the future due to other health issues.

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  • hockeynick39
    replied
    Anyone with Psoriatic Arthritis? Yeah, it's fun, got diagnosed a few months back. Also dealing with Ankylosing Spondilitis. Perfect combination!!!!!!!!! Some days are okay, others suck so bad that I am seized up and in so much pain. On meloxicam currently for the arthritis and have received several different steroid injections into the spine (one more and it's time for surgery). Will probably start the infusions in June for the arthritis.

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  • hooterville
    replied
    I also was diagnosed with RA a couple years ago and saw a Rhuematologist whom put me on methotrexate and folic acid to counter the former , been doing okay but the finger and knee pain can get on your nerves , esp. when handloading , gotta stop and take a few breaks , getting old does have its draw backs , but the experiences - ohh the experiences we have .

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  • Scottbird40
    replied
    I was diagnosed with RA two years ago, I went almost ten years with doctors saying I had chronse disease, and some of the meds they gave me for that fed the RA. I know how you feel, already had three heart attacks. My joints will freeze up especially my fingers and toes. Diabetic also so I get wiped out easily. Add my C.O.P.D. on top of that and I do what I can when I can, but the best thing is to keep doing. I know sometimes just going from bed to the bathroom and back is a chore, but put it in your mind to do some every day. RA is an auto immune disease, your immune system is fighting it's self, good diet helps a bit, and exercise every day.

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  • Rapier
    replied


    It is tough to be sick yourself, but in many ways it is worse when the wife is ill and you can only watch. Even though you help, in the end you are really left to watch.
    Ed

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  • 9.3X75R
    replied


    Powder, it's a tough call. Everyone has to do what they believe is best for them. In my wife's case had she not gone on Humira I am convinced she would have been in a wheel chair in another year or two. If one read the possible side effects of any drug it would be a tough call. How many millions all over the world are on Humira and will never have any problems...no one can know. It definitely has its place and apparently, unfortunately, it was our luck of the draw. The good news is that Tuesday and Wednesday we were in St. Louis at the Siteman Cancer Center and her MRI and PET scan were both clean as was her blood work. All the "ologists" were pleased with her recovery and progress. We aren't out of the woods completely but do believe we're on the right trail.

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  • Powderfinger
    replied


    I appreciate your advice, and very sorry to hear of your wife's condition hope only the best for you both. I thought a long time about going on Humira, 5 years ago I started experiencing pain in my right hip after x-rays I was diagnosed with slight arthritis, my condition rapidly got worse within 8 months with severe pain in both hips the right ball of my femur became completely degraded and the inflammation made the pain and numbness in my hands useless. After one hip replacement and while waiting to replace the other my 90 year old mother was diagnosed with Alzheimer's she is deaf and is in the onset of monocular degeneration. Humeria has allowed me to properly take care of my mother and to get back to my love of hand loading.

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  • 9.3X75R
    replied


    Since this thread started let me relate my wife's experience over the last 6 months. In July she was diagnosed with a brain tumor. Turned out to be Non-Hodgkins lymphoma. 6 hour surgery, 6 weeks recovery, 19 days of radiation treatments and now MRI's and PET scans every three months. No one has, will or can definitively point their finger at Humira but she has been taken off it, permanently and I doubt you could get her to take any biologic now. The lymphoma warnings about Humira are not put there for our entertainment. My wife isn't bitter nor am I, she had 5 good years by using it. However, if we knew then what we know now she never would have used it.

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  • Powderfinger
    replied


    I couldn't agree more, I was finally diagnosed with psoriatic arthritis ayear ago I went through the same torment. Doctors treated me for everything under the sun. Now Im on humeria, its no miracle cure. But Ihope by now your medical issues have gotten better.

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  • Ohio reloader
    replied


    I know this is an older post,not sure if anybody will see this. To all of you who have any form of an autoimmune disease i feel your pain. After 2 years of testing and being treated for everything from Lyme disease to meningitis I was finally diagnosed with an autoimmune disease. It is hard for people who don't have it to understand the pain and fatigue involved.

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  • The Only Sarge
    replied


    Well thank you Joe. Prayer is the greatest healer of all.

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  • JoeBUtah
    replied


    More prayers coming your way Sarge. All the best to you.

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  • The Only Sarge
    replied


    Fatman wrote:
    Sarge, good looking?



    But I'm glad you made it because the alternative sucks!
    Guilty as charged.

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  • The Only Sarge
    replied


    Rapier wrote:
    Dad gum, that sounds tough for a guy, waking up frozen, sounds like you were lucky to wake up. Had you kicked off they probably would have said you died from a heart attack. Some of this stuff is hereditary, I wonder about RA?
    Ed
    "They" dont know where or why folks get it.
    I am told lots of folks do die from it never being diagnosed. Cause of death would be stroke, heart attack etc. and not the true cause of death being RA.

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